About Rare Disease Day
February 28th marks World Rare Disease Day— a day most people don’t know about, according to National Organization for Rare Disorders (NORD).
In the United States, a rare disease is defined as a condition that affects fewer than 200,000 people. There are several conditions classified as "rare diseases."
Rare Disease Day is a global celebration to raise awareness among the public and decision-makers about the challenges faced by the over 25 million Americans and nearly 300 million people globally impacted by rare diseases, as well as all those still without a diagnosis. The National Organization for Rare Disorders (NORD) is the official US sponsor of Rare Disease Day.
- Did you know? 1 in 25 people are estimated to live with a rare disease globally
- Did you know? While each disease affects less than 2000 people, collectively many lives are touched.
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.
Rare Disease Day was first celebrated in 2009 in the United States
The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.
With each passing year, February 28 has continued to grow into an essential celebration to engage the rare community, elevate the stories of patients and families, and drive donations, the creation of new critical resources and innovative research in the rare disease space.
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